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Cystic Fibrosis

Mother Campaigns For NHS Coverage For Rare Cystic Fibrosis
By Catherine Roberts Children

Mother Campaigns For NHS Coverage For Rare Cystic Fibrosis

The mother of a 15-month old girl with a rare mutation of cystic fibrosis is lobbying the NHS to cover a costly but effective new medical treatment. Jess Nickless, from Devon, has asked the government to make Kalydeco available as a treatment for patients with the rare G551D mutation of cystic fibrosis, a serious genetic […]

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